Happy New Year!

When I asked Mom what she would like me to say on the blog today, her eyes lit up and she said to be sure and thank everyone for all they have done for her. Although she cannot remember the first weeks and months of her ordeal, she is keenly aware that she has been served and blessed in so many ways and she is overwhelmed to think of all the kindnesses shown to her and our family. Over the years Mom has written hundreds (probably thousands) of thank you notes and it is frustrating for her to be unable to express her gratitude in that way. Although this is more impersonal than she would like, please know how much your thoughts, prayers and numerous acts of kindness are appreciated!

How special it was to celebrate Christmas Eve in the usual way, gathering for dinner at Mom and Dad's house, reading the Christmas story and opening gifts. Shopping for everyone was too overwhelming to consider, so we convinced Mom to be satisfied giving gift cards this year. She spent many hours making lists and figuring out how many gift cards she needed to purchase, then putting them in envelopes and writing names on the outside. Simple tasks we take for granted must be relearned, and Mom was determined to figure it all out! Way to go, Mom!

Mom continues to improve day by day, and although she still has a ways to go, she has come so very far. Yesterday she visited the cornea specialist who was thrilled with the improvement in her eye. The severe redness is subsiding and the vision is clearing. Best of all, the area of scar tissue is smaller than first suspected and a transplant may not be necessary. Although the final verdict won't be known for a few months, once again we acknowledge the Lord's hand in this process.

Looking back over 2009 we are humbled at the many blessings we have received. Despite the trials we have faced we have seen the Lord's hand each step of the way. Our testimonies have grown and our love for each other has been strengthened and deepened. Lynn told me once that despite all her trials with cancer she wouldn't trade what she had learned for anything. I think we can understand her feelings a bit more after traveling this road over the past several months.

We sincerely wish each of you a wonderful new year! Happy 2010!!!

It's beginning to look a lot like Christmas!

It's December already and Christmas is almost here. Four months ago we never could have envisioned the progress Mom has made and we are so grateful for all the miracles we have received. Mom goes to speech, occupational and physical therapy twice a week for three hours each time. The therapists encourage Mom to do as much as possible around the house. Her right side is still quite a bit weaker than the left, so she is supposed to wear an oven mitt on her left hand during the day so her right hand will do most of the work. But she is able to cook simple meals, and do the dishes as well as the laundry. Her handwriting is coming along, although it is quite a chore. She is also working on the computer more and trying to create cards like she used to enjoy doing. Each card takes several hours to create, but Mom is determined!!! Although she gets around quite well, she trips easily and, in fact, fell twice this week. Slow down, sweet mother, and remember, "No more mothers jumping on the bed!"

Medically things are going well except for her right eye. Despite intense care from her ophthalmologist, the infection is not quite gone, so he sent Mom to a cornea specialist. The sobering news is that Mom will need a cornea transplant because the infection was not treated adequately in the hospital, which allowed for extensive scar tissue formation. Mom is praying for another miracle, but feels as if the Lord has already granted so many in her behalf that she shouldn't ask for more. However, we know He is very aware of our dear mother, so we are joining our faith with hers in requesting His help once again. We humbly ask for your faith and prayers as well.

We are so grateful to be celebrating this special Christmas season with Mom. We wish each of you a joyous holiday!

Happy Thanksgiving!

We had a wonderful Thanksgiving together. We ate at Mom and Dad's house, but everyone helped out so Mom and Dad could just relax and enjoy the time together with family. Mom received a cute little treat from a neighbor called Blessing Mix, which contains different snack items such as m&m's, bugles, pretzels, etc. She enjoyed it so much that she wanted to make one for each family member. She and Dad spent quite a lot of time shopping for all the ingredients and then Mom carefully assembled a bag of goodies for each child, grandchild, and great-grandchild.

After dinner we had a special Thanksgiving program. Everyone gathered in the living room to watch a beautiful DVD put together by Jim Jr, set to the song, "The Climb," by Miley Cyrus. He included a few photos from the early days after the stroke, and then focused the rest on all the progress Mom has made. It was sobering to see where Mom started, and exhilarating to see the miracle of her recovery unfold before our eyes. After watching the DVD, everyone was invited to share their thoughts and feelings about the ordeal. Our focus was on the many miracles showered down upon us by the Lord, who opened countless doors so Mom could get the help she needed to recover. Mom then expressed her gratitude for everyone's love and support and we ended the program with yummy desserts. It was a wonderful evening.

This week brought several more miracles as well. On Monday Mom went to the hearing specialist where they discovered that her hearing loss was just a wax buildup, so now she can hear again!!! Her eyesight is getting better as well, and she continues to regain more and more fine motor function through diligent practice and her wonderful therapists.

As we begin this holiday season, we continue to be full of gratitude to have Mom with us, and in awe of all the progress she has made and continues to make. We are also thankful for each of you for the love and support shown us through this long process. Most of all we are grateful to a loving Heavenly Father who has been with us every step of the way!

November updates

Sorry it's been so long since I've updated the blog. (Can you spell SWINE FLU? I can!)

Mom has made absolutely amazing progress these past few weeks. She has been trying to cook more, and after one LONG afternoon in the kitchen that left her exhausted and still hungry, she has since had better luck. Mom has made her yummy macaroni and cheese along with her fabulous spaghetti, and although it takes a lot out of her, she wants to do the things she used to do.

To her delight, she finally figured out how to get down in the tub so she can take a bath as opposed to a shower. (Who ever knew it was so far DOWN from a standing position, not to mention equally as far back UP when you're finished?) She also washes her own hair and is maneuvering the blow dryer as well.

Mom continues to faithfully do her exercises and practice writing her name. In addition, she has begun using her computer again, typing with both hands! It is very, very slow and painstaking, but she is equally as determined. Early on, Mom couldn't remember where all the keys were on the keyboard, and several of them were worn off which made it extra hard to type. Undaunted, Mom carefully went downstairs and found her old typing textbook from high school (she knew right where it was!) and brought it up to the computer room so she could find the right keys. Thankfully, Randy had an extra keyboard, so now Mom can actually see the keys she is trying to use. Since handwriting is still a challenge, Mom is determined to use the computer to keep up with her correspondence. One of the things she feels the worst about these past few months is that she hasn't been able to write Jace his weekly missionary letter. She is determined to remedy that situation!

Mom's eye is finally getting a bit better. Her eye doctor admitted today that when he first saw her 3 weeks ago, he wasn't sure her eyesight would return because of the severity of the infection. Although it will take another two or three months, he is quite confident her vision will return. Whew!

We are also thrilled to report that the PEG line has been removed. HURRAH!!! It was a simple process done in the office, and other than a bit of discomfort at the time of removal, there was no pain involved. That's good, because all the pain at the time of insertion should have counted for alot!

New this week is the discovery that Mom has lost much of the hearing in her right ear. This wouldn't be unusual as a result of the stroke, so she has an appointment on Monday with a specialist to check things out more thoroughly.

This week Mom's sister, Louise, has been up from California to visit and help out. It has been so fun for them to spend time together laughing and reminiscing, and the week has gone by all too fast. As Mary Engelbreit says, "There is no friend like a sister in calm or stormy weather!" Mom is extra blessed in the sister department on both sides of the family!

As Thanksgiving approaches, we are especially grateful to have our dear Mother home again, and are in awe of the progress she has made. We are also grateful for each of you who have cried and rejoiced along with us these past four months. We couldn't have done it alone!

A Fast of Gratitude

Today has been a sweet day of fasting in gratitude for the miraculous events that have occurred over the past three months. We are in awe of the progress Mom has made. We know that Heavenly Father has been there for us through all the ups and downs, and has caused many miracles to occur. The highlight of the day was that Mom bore her testimony in Sacrament Meeting. Although I wasn't there, I heard from several people that it was beautiful. I would imagine it was kind of like hearing from Lazarus!

This week Mom has continued to improve and can now do many things on her own. The various therapists have assigned "homework" and Mom is faithfully working at her assignments. She is supposed to do everything possible for herself, such as washing her own hair, doing the dishes, unloading the dishwasher and keeping track of her appointments on a calendar. She can eat well with her right hand and even helps with simple cooking tasks. Yesterday Mom and I went shopping for some new bed sheets and she walked around the entire store without even leaning on the shopping cart!!! She is diligently practicing writing her name and even signed the check when we went shopping. Although progress seems slow to her, cumulatively is is astounding, and she has come so far from where she was two weeks ago when she first came home!

Mom's right eye continues to slowly improve. This week the doctor removed the medicated patch and instructed Dad to put several different (EXPENSIVE!) eye drops in three times per day. He explained that Mom's eye is numb because of the stroke, which is actually a blessing at this point, as her condition would be excruciating to a normal eye. However, he still expects that the eye will recover and that Mom's vision will return.

We would like to sincerely thank each of you for your interest, prayers, fasting and kind acts too numerous to mention. Mom has been so eager to hear her story and thank each person who has helped her in any way. She wants to write thank you notes (now that's definitely our Mom!), so we're slowly and painstakingly working on letter writing! In the meantime, please know of our love and appreciation for all you have done for our family! We are so grateful!

Leaps and bounds!

Mom continues to improve this week. She went to the grocery store with Dad on Thursday and didn't need a wheelchair or even one of those riding carts. She just walked through the store with him! She's doing extremely well getting around the house and can even get up and down off the floor by herself. When you talk to her on the phone it sounds as if she's back to normal.

However, some basic skills still need relearning, and at times she's a bit of a danger to herself because she's in a familiar environment and wants to do all the things she's used to doing. For instance, she decided she wanted a toast, so she put a piece of bread in the microwave and turned it on for a very long time. Dad didn't realize what she had done until smoke started pouring out of the kitchen! She also decided she wanted to change the sheets on the bed, (despite the fact that Dad just did it on Thursday) so she took them all off and stuffed EVERYTHING in the washing machine at once - mattress pad, sheets AND blanket!!! Needless to say, they didn't quite fit and it took awhile to get everything laundered and back in place so they could go to bed!

But she is definitely improving in so many ways. I've been out of town since Wednesday and could hardly believe how well she did tonight at dinner using her RIGHT hand! And she is trying to work on her photos (although in a few weeks from now she will probably be frustrated with her current efforts!) She is also practicing how to write her name and is making pretty good progress. Dad writes her name in cursive at the top of the paper, and then she practices writing it below his example. In addition, she is lifting her weights several times each day in an effort to strengthen her arms. The best part of all is that she can laugh when things don't go well, instead of getting upset.

Medically she is improving as well. We are hoping to have the PEG line removed in the near future and are so glad she hasn't really needed it. Although her appetite is still not very great, she eats small portions at every meal and food hasn't been a struggle since we've gotten home.

The one big concern is Mom's right eye which has been infected on and off since the end of August. She has been on eye drops all this time, and her eye would seem to get better for a few days and then get red again. We just thought it was because she kept rubbing her eye and reinfecting it. However, Dad got her in to their ophthalmologist on Thursday, who said the drops actually caused a dangerous situation within her eye to where she currently has almost no vision at all on the right side. He put a special medicated contact in that eye, prescribed two different kinds of eyedrops, and wants to see her every 3 days. He feels everything will be fine, but is frustrated at the treatment she received. We are just grateful he knows what to do!!!

This week will be full of doctor appointments. Outpatient physical therapy begins on Wednesday, and will probably be three times a week, for three hours each time. In addition, there will be eye appointments as well as a visit with her regular internist who will be taking over Mom's care from all the inpatient physicians. Dad's becoming quite the scheduling genius, as well as a full time chauffeur!

The hospital has also agreed to provide ten more days of transitional care, where they pay for someone to come in and help out in any way needed for three hours each day. They will be coming in the afternoons, which will give Dad a bit of a break so he can run errands or work out in his shop for a bit, which will be so nice for him.

Thanks for keeping us in your prayers. Although this is a bit tricky at times, Mom is progressing in leaps and bounds now that she is home. It's wonderful to have her back!

"Grammie's out of the woods!"

What a fun evening! Mom came over to my house to eat cake and ice cream for Alan's birthday celebration. She hasn't been here since the 24th of July, so it seemed like old times. She was talking to Heidi on the phone and when Heidi asked how she was doing, Mom replied, "I think Grammie's out of the woods!" It was pretty cute.

Each day Mom is getting more and more aware, and trying to figure out new things. Today she and Dad went for a walk around the culdesac together. She also looked through her pictures for a bit this morning, so she's slowly getting back into the swing of things.

Now that Mom's home and things are going well, I've been toying with the idea of just updating the blog every few days. It's a hard thing to give up after 88 days of daily posts, as I consider you all dear friends who have sustained us with your faith and testimony throughout the ups and downs of our beautiful Mother's recovery. Thanks for joining our family on this journey, and watch for a new entry in a few days! I promise to keep you posted!

Twelve weeks!

It seems like forever ago that we walked into the hospital at 5:30 a.m., with the sky still dark, and Mom excited about finally getting new knees. I can still picture her walking down the hall to her room in her cute light blue jeans and matching sparkly shirt, and I can still remember saying goodbye to her as they wheeled her away, all snuggled under a warm blanket. Bit by bit and day by day, she's making progress towards where she used to be.

Today Mom worked at holding a fork and getting food to her mouth, and wanted to do it without help. Dad is so cute to help her just enough so she is successful. She is actually eating more than she did in the hospital, and the PEG line is not really necessary. Her sweet personality shines through, and also her independent streak! And there is no reasoning with her when she has her mind made up about something. But that just shows that she is making great improvements, so we'll take it. She is doing amazingly well getting up from a sitting position, and since she gets up every few minutes to move to a different seat or walk to a different room, she's getting lots and lots of practice! She is also getting more steady walking around, so we don't feel as if we need to hover near as much as we did on Saturday - for which I'm sure she's grateful!

Mom also enjoyed looking through some of her photos which were taken in the early summer. She had them all packed up to work on during her supposed 3 day stay after surgery. I guess 84 days later is a bit of a stretch, but it's exciting to see her doing something she loved to do before.

We're still trying to figure out options to give Dad a bit of a break, but he is hanging in there. He deserves the Nobel peace prize for all his efforts, and I learn so much just watching him. Way to go, Dad!!!

I'll strengthen thee, help thee, and cause thee to stand!

Today Mom was able to make it to Sacrament Meeting. When we drove up to the Church, she didn't want to park in the handicapped stalls even though we had a permit. Mom enjoyed being at Church again, and seeing her dear neighbors and friends who have been so kind and thoughtful and helpful! She commented on the way home about how special her ward is. We couldn't agree more!!!

We have seen much improvement in Mom just since yesterday. She is alot more stable walking around the house, and we don't worry quite as much about her getting up and down. Good thing too, since she doesn't sit in one place for long! When Jim Jr. came to visit he remarked that she is probably getting more therapy at home than she ever would in the hospital! She is working very hard to be independent, and even tried to do the dishes tonight. At dinner she laboriously tried to eat with her right hand, which is quite a bit weaker than her left. She said she needs to learn how to do things, so she didn't want any help. It is frustrating to her, but she is definitely trying.

Although she is improving, it remains a full time job for Dad to keep up with everything. We need to find some way for him to have a break for a bit each day, since this is non stop. As I said yesterday, Mom can do a LOT of things, but some steps are just plain missing, and she needs constant supervision. Although we are thrilled beyond measure to have her home and can see daily improvement, this will be a long process.

Despite the enormity of the task, we know things will work out. Today as I sat in Sacrament Meeting I was very touched by the words to a familiar hymn - How Firm a Foundation. I've sung it hundreds of times throughout my life, but it has never had more meaning than today:

Fear not, I am with thee; oh, be not dismayed
For I am thy God and will still give thee aid.
I'll strengthen thee, help thee, and cause thee to stand,
Upheld by my righteous, omnipotent hand.

He has truly strengthened and helped Mom, and caused her to stand. We know He will continue to be at her side.

HOME SWEET HOME!!!

SHE'S HOME!!! Just like we have been hoping and praying and fasting for, Mom walked out of the hospital today, completely on her own!!! It was so exciting and amazing and wonderful! After 82 days in the hospital, it was time for a change of scenery, and what better place to go than HOME!!!

We all arrived at the hospital at 9:00 a.m., and Mom was dressed and ready to go. The therapy staff had one more physical therapy session scheduled at 9:30, so they had Mom help load all her personal belongings on a cart, as a sort of "real life" practice. We would never have thought to have her do any of that, but the physical therapist wanted Mom to realize that she could do most anything she wants to do. (She needn't have worried because Mom pretty much ran circles around us the rest of the day!)

Then the nurse went over the discharge papers, and Mom signed them herself! (It didn't look anything like her previous signature, but hey, it's a new life!!!) Then we posed for pictures in Mom's room and walked out! It was just that simple!

When we pulled up at Mom and Dad's house, it was decorated with two banners - one from the ward welcoming Sister Whitehead home, and another from us kids. The banners brought even more smiles to our faces, if that were possible! We helped Mom into the house and she collapsed on the couch -- but only for a minute. After that she wanted to see things, and even went for a walk around the backyard. I think she felt a bit like Rip Van Winkle - when she left in July, her garden was in full bloom, and today it's the middle of October and everything is harvested.

We had a flurry of things to do - adding more safety rails in the shower and getting a slew of prescriptions filled, but Mom was right in the thick of things. She decided she wanted a BLT sandwich and then visited with the neighbors. Then it was time for a nap.

The rest of the afternoon and evening have been quite the whirlwind. Dad and I aren't sure we can keep up with Mom. She didn't sit still for more than a couple of minutes at at time, and we exhausted ourselves trying to keep her safe, so much so that she commented on the phone to one of her granddaughters that she was being corralled on the farm!

Realistically, this will be a full-time operation to keep track of Mom. She can do so much, but still can't quite remember all the steps for many basic tasks. We are mostly worried about her falling, but have had to realize that despite our best efforts, there is no possible way to watch her every second. Hopefully she will sleep soundly so Dad can get some rest as well.

As we look back on this three month journey, we are in awe of the overwhelming love and concern we have been shown. The yard has been mowed and the garden tended. Visitors have come to buoy us up and we have received many sweet cards and emails. But it hasn't stopped there. Mom and Dad's next door neighbor built a beautiful railing for the stairs in the garage, and several people have offered to build one for the front porch. People are literally waiting in the wings to do whatever needs to be done. We are humbled and grateful for such an outpouring of kindness. Thanks to everyone for your prayers and faith and fasting. The Lord has heard your prayers and blessed us beyond measure. We can never repay your generosity and Christ-like love.

Jim Jr Comments. I went over to IMC and had breakfast with mom 1 last time this morning. I bought scrambled eggs w/cheese, sausage & bacon with hashbrowns and we ate somewhat similar breakfasts! (The food is actually very good here, and is made out of the same kitchen that visitors frequent. After all this time, we haven't tired of eating here --- I am speaking for myself, of course!)

Then Mom was ready to go. Dad, Diane and Randy showed up shortly thereafter, we said goodbyes, mom signed her discharge papers and we were on our way. We spent the rest of the afternoon putting up the rest of the fancy shower heads and safety grab bars, and thoroughly enjoying mom back at home. She was up and down and all over, but soon wore out from all the excitement! What an incredible last 12 weeks! We are so grateful for all your attentiveness, prayers and support. Isn't that what friends and family are all about? ....

All my bags are packed, I'm ready to go!

Today was Mom's last full day at the hospital. Therapists, nurses and other staff members came to tell Mom goodbye, as many of them won't be working tomorrow. This is one of the sweetest parts of their job -- seeing someone get well enough to go back to their life! Mom is grateful for each one of them and comments often how kind everyone has been to her. She truly appreciates everything that every single person has done to help her progress.

Last night Mom was anxious about getting her things packed up. It's amazing how much stuff you can accumulate in a little hospital room! Today we brought a couple boxes and got everything emptied out, leaving only the bare essentials necessary to make it until the morning. She was very concerned that we not forget anything and supervised the entire process. Then she took a nap!

For lunch Mom had one of her favorite meals ever -- an avocado toast! I brought some yummy bread, which we toasted super crisp, (she actually likes it black on the edges!!!) buttered generously, and added sliced avocados on top. We sprinkled lemon juice over the avocados and added salt and pepper. She ate the entire thing! That had to have added some serious calories to her day, but it was actually quite nutritious. I think once she gets home and can eat what she's used to eating, it will make a big difference.

Well, as little kids often say when counting down to an exciting event: ONLY ONE MORE WAKE-UP! All we have to do is go to sleep and the next thing we know it will be time to pick her up! Who says miracles cease to exist?!

T minus 2

The countdown continues and things are still looking incredibly great. Today I had to drop my car off at a shop just down the road from the hospital, so Dad said he would pick me up. Imagine my surprise when Mom came along for the ride!!! When they pulled up, it looked so natural to see Mom sitting in the front seat of their cute white car. In the days after Mom's surgery, I often rode back and forth to the hospital with Dad, and I always sat in Mom's place. It almost felt sacred to be sitting in her seat, and I used to wonder if she would ever sit there again. And now, here we are! (I never knew it could feel so good to ride in the back seat!)

Randy came along for the ride as well, and after picking me up, we all continued on to his house so Mom could see the new carpet they had installed a couple weeks ago. Mom was able to go down all the stairs into the basement, and then back up again. Jim and Ruth stopped over for the excitement, and it was great fun to all be together again at a place other than the hospital!

Earlier in the day I talked to Mom on the phone and she told me we needed to start packing up all the things from her hospital room to take home. It was so natural to be talking with her that way and planning all the things we need to do. She talks and acts just like she always has, and it is thrilling.

Things are falling into place for the big day. Everyone is so happy for us and we have received such generous offers to help. We're still trying to figure out exactly what we need, but it is heartwarming to know that people care so much. We know it won't be easy, but we're excited to have made it this far. Thank you again for everything.

MOM'S GOING HOME!!!

SURPRISE!!!

HAPPY DAY!!!

INCREDIBLE NEWS!!!

MOM'S GOING HOME ON SATURDAY!!!

We can hardly believe it, but Mom has progressed so quickly these past few days that she is about to achieve the goal which has been posted in her room for weeks: Walk out of the hospital and GO HOME!!! It will be thrilling to see her fulfill the miracle that so many people all over the world have been fasting and praying for. (Don't worry, we'll take video!) You all are part of this miracle and we owe so much to you for your love and support in our behalf. We can never thank you enough.

Just a few short days ago, although Mom was making great progress, we still felt that going home was several weeks away. However, since discontinuing several meds last week, Mom has progressed in leaps and bounds. It's amazing what you can accomplish when you don't feel sick! Despite what happens or doesn't happen with the insurance appeal, Mom has come so far that there is nowhere to go but home. The therapists feel she is ready and doesn't need further inpatient therapy. She will continue to receive outpatient therapy up at LDS hospital, but starting Saturday, she will be living at HOME! Dad is going to shoulder the greatest load, but since Mom can do so many more things on her own, the task doesn't seem quite so overwhelming.

We have a list of things that need to be done at home before Saturday morning, but most of them aren't too difficult. Dad, Randy and I went shopping and got some handrails, a shower chair, and a handheld shower for the bathrooms. We also need to remove all throw rugs from the house and anything else that is a potential tripping hazard. In the near future we need to install a hand rail on the steps from the garage into the house, but for now we can just help her maneuver them with our support. THIS IS EXCITING!!!

Today Mom ate most of her breakfast, which was a miracle in and of itself! She ate a few bites of lunch and dinner, but we're not complaining. Since Mom and Dad's house is literally 5 minutes away from my school, I'm planning on going straight there after school and making dinner with Mom's own recipes. Hopefully that will get her eating again. It will give Dad a break for a bit too, so that should work out well.

This is more exciting than Christmas!!! We have our Mother back!!! Wahoo!!! I jokingly commented this afternoon that had we known at the beginning that Mom would be able to go home in 11 weeks and 5 days, it would have made things a whole lot easier. Isn't that the way it is with any trial? Alas, the Lord wants us to exercise faith and look to Him. We humbly acknowledge His hand in this unbelievable miracle. Thank you for traveling this journey with us.

My life in pictures

Tonight we three kids enjoyed a delightful time with Mom showing her pictures and video of the past 78 days of her life. (Actually, I'm sure all four kids were there -- Lynn wouldn't have missed this for anything!) Thanks to Jim Jr.'s love of photojournalism and his dedication to documenting Mom's progress, on the spur of the moment he was able to hook up his camera to the TV in Mom's room so we could witness together the journey she has travelled these past 3 months. It was humbling to relive the miracles that have been bestowed on our family and finally be able to share them with Mom. She was so coherent and marveled at how far she has come. In addition, she was able to provide some enlightening commentary from her point of view, which was fascinating. It was difficult to watch the situation unfold in the early weeks, and then equally thrilling to see her exponential progress these past two weeks. We are in awe of the way the Lord has blessed our Mother and each one of us. We have not walked this path alone.

Mom had a great day in therapy. She accompanied the therapists downstairs to the cafeteria on the first floor, without her wheelchair -- walking completely on her own, taking the elevator and all! Ruth, Alycia, Parker and Breck met Mom downstairs and she had a fun time visiting with them.

Although she went down to the cafeteria, Mom didn't want anything to eat. However, tonight we were able to discuss the reasons why food is so unappealing to her, and ask what would make the situation better. She gave us some suggestions as to things she would enjoy eating, but made it clear that food has never been something she cared too much about. (Goodness, I certainly didn't inherit that trait!!!) We are going to bring some items from home that she requested, and see if that helps.

Mobility wise, Mom is getting more steady by the day. Other skills are coming back as well. This afternoon she practiced writing her name, and tonight she stood at the sink in the bathroom and brushed her own teeth. Things are really clicking and it is so exciting to watch our Mother come back!

Thanks for all your love and prayers and support. Still no word about the appeal. Keep us in your prayers!

Jim Jr's comments. This morning, mom was alert as she has ever been. Speech therapy was right on task. Before physical therapy, after eating acceptably (she's not a huge breakfast person, but that's what arrives on her plate every morming) -- mom had to go the bathroom. She stood straight up, walked right to the bathroom, sat down, did her thing, got up, dressed herself, walked over to the sink, washed her hands and dried them and walked back into the room just like nothing! This is absolutely incredible!

She fussed with her shoe laces a bit. The physical therapist walked in, and she stood straight up for Alex. He just about lost it, because he hasn't been around for a few days. When we told him she had walked up and down a whole flight of stairs he couldn't believe it. Well, she started walking out of the room and right down the hall to the gym (some 220+ feet) without any complaint. She even walked fast for part of it! Alex checked out her knees and motion in walking and shook his head in disbelief that this could even be the same person he saw late last week (who was struggling to even get up off the bed or out of the chair).

This evening, though, mom didn't eat but a morsel or two at best -- and, as Diane mentioned, during our discussion about her lack of appetite (with we 3+1 kids), I gave her a bowl of grapes and Lays potato chips, which she promptly devoured and munched down before our very eyes! We ate a Big Cherry just before leaving and all had a good laugh. A most incredible day! Astounding! Amazing!

Mom, your goal of walking out of the hospital and going home will be realized sooner than you think!

A whole new world! Happy Columbus Day!

Mom is still doing great today! For therapy, she walked up and down an entire flight of real stairs - from the 12th floor to the 11th floor and back up again. She did super! Also today, she used a fork to eat some salad, completely on her own. She did it left-handed, as that hand is more advanced than her right one, so perhaps she'll be ambidextrous when this is all over. She only ate a couple bites of salad, but the skill was definitely there.

As far as eating is concerned, it is still not on Mom's tops list, although her stomach is feeling better. The vitamins and/or acid-reducers must have been the culprits, since she is not in discomfort since discontinuing them. Dad got some training today in how to use the PEG line to supplement Mom's calories, so he knows how to do it, but hopefully her eating will pick up soon so he doesn't have to. We've tried every tempting food we can think of, to no avail. It doesn't do ANY good to push, so we just let her take the lead.

Still no decision from the insurance appeal. Jim Jr. found out today that the package he had overnighted to New York was actually delivered and signed for on Saturday morning as promised, but never taken upstairs to the appeals committee. Jim Jr. talked to them today and they are supposedly going to look everything over before making their decision. I just wish they could see the videos from yesterday. If a picture's worth a thousand words, those videos speak volumes!

The hospital instituted some new visiting rules because of the H1N1 influenza. Beginning today only two visitors are allowed at any one time in a patient's room, with visiting hours ending at 8 p.m. That doesn't really put a crimp in our style too much, because we can just go out onto the couches at the end of the hall if we have more than 2 visitors, or some of us can go get a bite to eat in the cafeteria downstairs. Kind of sobering to think about, however.

Anyhow, Mom's making fabulous progress. Thanks for the fasting and prayers!

No more mothers getting out of bed!

Here are some amazing videos of Mom today. The first one is my absolute favorite and will bring tears to your eyes.

http://www.youtube.com/watch?v=pOcxKMPC26o

The second one is pretty cute and shows that Mom still has muscles despite the fact that she's basically been in bed for 11 weeks tomorrow! It will make you smile!

http://www.youtube.com/watch?v=78Nqx8cTCJo

As you can see from the videos, Mom's progress is absolutely breathtaking! Today for the first time, she got out of bed completely by herself, stood up, and walked out into the hall to sit on the couches and visit. Later when some of us were going home, she insisted on getting out of bed again and hugging each person who was leaving. It was vintage Mom, as she always accompanies you outside when you are leaving her home, and waves in the driveway until you are gone. Other than the hug she gave me personally, the one I really enjoyed was her hugging Dad! Pretty sweet!

Yesterday, Mom started laying on the couch in her room for a change of pace from the bed. She has always enjoyed taking a little cat nap on the couch at home, so it's fun to see her doing something familiar.

She also said her stomach is feeling much better, but alas, is still not eating more than a few bites each meal. At least she doesn't feel sick, so perhaps the eating will come. Alan brought her a Sees chocolate and she did eat that, but when he asked what kind she would like tomorrow, she didn't want another!

I was able to visit with her one on one for a few minutes tonight, and told her my theory that it might be hard for her to recognize how much progress she is making since she doesn't have the perspective of remembering how far she has come. She told me she does realize she is making progress and actually seemed quite upbeat. It was so reassuring to hear her express herself like my Mother!

Now that she's so mobile, it will be a real challenge to keep her from getting up on her own at night. She assured us that she doesn't want to fall and that she will call the nurse if she needs to get up. We teased her about the poem Five little monkeys, jumping on the bed, and reminded her that one fell out and broke his head. We certainly don't want that to happen! Sleep tight tonight, Mom, and remember, No more mothers getting out of bed!!!

Soccer Mom

Today was a pretty good day physically for Mom. After walking all the way down the hall, she went up and down the steep steps in the therapy room. Then on the way back to her room, she kicked a ball down the hall, soccer style! Who knew we had a soccer Mom?

She also said her stomach felt better today, and she ate a bit more food than usual, although not nearly as much as we would have hoped. (However, anything is better than last night's half a roll.) Actually today at lunch she ate an entire roll with butter along with some baby tomatoes and cucumbers. She also had some popcorn this evening, so we're making a bit of progress. We'll take it all!

Mom's spirits seemed to be somewhat better today as well, although she did say that her condition was "dismal." When we asked what she meant, she said she can't do much and it's kind of disconcerting. We told her that the ICU doctor said we would be surprised at her progress at the year mark, and she was heartened by such a prognosis. As we analyze her feelings, it is easy to see her perspective. She told us that she has absolutely no memory of anything since her surgery, and in fact, can't even remember as recently as her birthday (Sept. 3rd). When we tell her how great she is doing, it is somewhat confusing to her since she doesn't have the perspective of knowing where she's been. All she knows is that she can't remember how to do even the simplest of tasks and that her hands don't work very well. It would be quite disconcerting from that point of view, to say the least!

But it is truly heartening to see her progress week by week. When we look back even two weeks, her progress is absolutely astounding. We'll just keep hoping and praying for miracles in her heart and mind as well as her feet and hands!

Tonight as she said the family prayer she prayed that ,"Our eyes might be enlightened and our souls be filled with Thy love." Well said, sweet Mother, well said.

p.s. Nothing from the insurance company. The appeal can take up to 72 hours, so it sounds as if we may not know until Monday. Keep praying!!!

I was wearing the blue socks!

One of our biggest fears came to pass last night. Despite the bed alarm, Mom got herself up and out of bed in the middle of the night and ended up on the floor. She was not upset, and fortunately did not seem to be hurt. Her comment to the doctor about it this morning was, "I was wearing the blue socks." We had to smile, because yesterday we had a discussion with her about being sure to wear the blue socks with the grippy white stripes on them when she stands up so her feet won't slide out from under her. Her short term memory is definitely improving!

Early this morning Alan stopped by the hospital on his way to work to refuse the vitamins before they had a chance to give them to Mom. When Jim Jr. arrived he was able to speak with Mom's doctor about our desire to discontinue some of Mom's meds - namely the vitamins and stomach-acid reducers. Although the doctor did not agree with our theory, Mom did not receive any of those medications today. Unfortunately, it didn't seem to make much of an immediate difference, as she still did not eat much today. Dinner consisted of half a roll. Consequently, they are giving Mom supplemental nourishment through her PEG line tonight. However, we want to give our theory a few days to see if it has any positive effect. We don't have much to lose!

This morning Mom participated in therapy, but was pretty sleepy this afternoon. When I arrived at dinnertime, she finished her dinner (all half of a roll!) and wanted a shower. I'm happy to announce that I redeemed myself this time around and it was not too traumatic of an experience! (It's amazing what you can do when you practice with the funky shower equipment BEFORE wheeling Mom into the shower!) Dad found the blow dryer and we got some warm blankets, so Mom ended the day snuggled into bed, all clean and cozy.

Still no word on the appeal of the appeal of the denial of continuing insurance. (How's that for a mouthful?) Jim Jr. put together a packet of information along with video footage of Mom's progress, and overnighted it to New York where the appeals committee will be meeting tomorrow. It's hard to believe that anyone who sees the videos could say Mom is not progressing. We trust that Heavenly Father will intervene if necessary. Please join us in praying for their hearts to be softened.

And for Mom to STAY IN BED!!!

Light at the end of the tunnel!

http://www.youtube.com/watch?v=O0yI9vaZEf8

Mom going down stairs (this week)

http://www.youtube.com/watch?v=gfbwOMH10Ls

Mom walking (Sept. 27)

Here are the links to some video of Mom that you will enjoy. The one of her walking is almost 2 weeks old, and she can get around even better than that. She now only needs one person at her side instead of two, and she is doing most of the support all on her own. So, as you can see, Mom is really making progress.

The hope is to get her home a week from Saturday, but we have a LOT to do before then. Although she is quite mobile, she is very fragile, and hasn't re-learned many of the simple tasks we take for granted. We feel she needs a bit longer on the 12th floor, and the staff all agrees, but the insurance company has once again denied further coverage. This time we also lost the appeal, but it is being sent to an independent group for a further appeal, so we'll see. Their comment is that she is not making enough progress. Jim Jr. sent them the above videos which show tremendous progress, but we're not sure they viewed them before making their decision. What a crazy game we're playing, and we don't even know the rules! It's been quite the education, to say the least.

We're working hard to get to the bottom of Mom's stomach pain and have narrowed it down to a couple of simple meds she is receiving. Believe it or not, one of the suspected culprits is her multi-vitamin, so we feel there is nothing to lose by taking her off it for a few days. Unfortunately the doctor needs to sign off in order to discontinue a medication and he was at another clinic today. The other option is for the family to refuse it, so Jim Jr. is going to be there at the right time first thing in the morning to do just that. Hopefully it could be something as simple as that! If not, at least we tried.

Thanks for your continued prayers. We're getting there!!!

There's no place like home!

Today Mom went on a field trip home!!! The physical therapist and assistant accompanied Mom and Dad and gave recommendations on items that need to be done around the house so Mom can function at home. Mom was able to lay on her very own bed, sit at her computer desk, and rest on the couch in her very own living room! She said it felt so good, but she was understandably exhausted when she arrived back at the hospital.

It's so exciting to see Mom this mobile, but it also has some drawbacks. Today Dad and I went to talk to someone on the floor about insurance, and when we got back to Mom's room, she was sitting up on the side of the bed ready to push herself to a standing position. While Mom can get around quite well, she always has at least one person by her side for support, so we are a bit anxious about her trying to get out of bed alone. The last thing she needs is to fall and injure herself.

Our next hurdle to overcome is Mom's stomach pain. If we look back on the blog we can pinpoint the exact day she stopped eating - Sept. 12th. She has consistently complained of stomach pain since then, and unfortunately, it seems to be getting worse. She can't say exactly what or where the pain is, only that her stomach hurts and she doesn't feel like eating. It's all a vicious circle, because if she could feel better, and feel like eating, she could have more strength. Currently she is getting most of her calories from drinks like Ensure, Boost, and instant breakfast. We're going to put on our detective hats and see if we can't get to the bottom of this. If it's not one thing, it's another!

But all in all, it's been a great day! Like Dorothy says, "There's no place like home!"

She's baaaaaack!!!

WOW is all we can say! We had a real glimpse of Mom/Grammie today. She had that special twinkle in her eye as she visited with some of her grandkids and asked how they were doing and what they were up to. As we gathered around her bed for family prayer, it felt like old times (except that Brady offered the prayer in Chinese!) Everyone was so thrilled to see the Mom/Grammie we know and love! Although she is weak and tires easily, her sweet personality shone through.

Mom accomplished much today in the way of therapy. She can get out of bed, stand up from a seated position, and walk, all with minimal assistance. She is also able to go up and down stairs in the therapy room. Wahoo!

But our biggest excitement of all is the "field trip" home, which is scheduled for tomorrow afternoon. Alex, Mom's physical therapist, will accompany Mom and Dad in a hospital van on a visit to Mom and Dad's house. The purpose of the visit is to check out what accommodations will be necessary for Mom to function at home. We are so excited for her to go home, if only for a short time, and remember what her life is really like!

With progress like this, it is easy to picture Mom going home in the near future. Although she still has a long road ahead of her, she is traveling in the right direction! This is getting exciting!

Magnificent Monday - 10 Weeks!

Today was a wonderful day of progress for Mom and a terrific way to pass the 10 week mark. Mom walked quite a bit today, and even went up and down several stairs in the therapy room, which is especially exciting since there are 3 steps into Mom and Dad's house. In addition, Mom was able to get from a sitting to a standing position several times today with only minimal help. She also got herself down from a low table onto a mat on the floor, and then up back onto the table almost completely on her own! She even supported herself for a brief time while standing in a doorway. The day's efforts were pretty exhausting, but she enjoyed a back and neck massage before bed. All in all it was a giant step forward. It's starting to feel like she is firmly on the path to recovery and independence, and gaining momentum each day. Here's hoping we are done with setbacks!!!

This is exciting!!!

Popcorn and lemonade!

Thank heavens Mom is feeling better today!!! Although we didn't get to take her home on an outing like we had hoped, she enjoyed watching Conference in her room with Dad. At dinnertime she didn't eat too much, but said she wanted some popcorn, her favorite. So, we popped a small bag and she surprised us all by feeding it to herself! Then she went on to drink a cup of lemonade and munch on some apple slices ALL BY HERSELF! How exciting that she has enough control of her hands to manage lifting a glass and picking up popcorn on her own. This is a great step towards independence!

The nurse had some interesting insights about eating. She pointed out that an entire tray of food might be overwhelming to Mom. That really rang true to me, especially since Mom has never been a very big eater. In fact, she has always taken small portions of food, so the large quantities very well might be an issue. Perhaps smaller portions spread throughout the day might be the trick. Now, just how to go about that is a mystery, but it might be worth pursuing. Never a dull moment!

We are grateful for this improvement, and while it might seem small, to us it is HUGE! As we look back over the past TEN weeks (tomorrow, believe it or not) we can definitely see a pattern of good days followed by not so good days, and some downright awful ones as well. However, the sun always comes out again and we take comfort in knowing that Heavenly Father is in charge. We can't thank you enough for all your support and prayers on her behalf.

Eat some popcorn and lemonade in celebration!

Ouch!

Mom was in a lot of pain today despite the pain meds she is receiving. It was hard to watch her be so upset and not be able to do anything to help. To me, that is the most difficult part of caregiving - that you can't fix things, and sometimes nothing you do helps. I tell myself that I just need to show love and support. Today I told her I loved her, and she said she already knew. I guess that's good.

As I was leaving, I spoke to the nurse and mentioned that we had no idea this procedure would be so painful. She replied, "It's not. Your mother is just choosing to focus on it." I almost decked her, but decided to just turn and walk out so she wouldn't see me burst into tears. Let's poke a quarter inch hole through her abdomen, muscle wall and stomach and then see if she chooses to focus on it or not. (Thanks for letting me work off steam.) (Sorry.)

Anyhow, Mom had conference on TV when I arrived, but she wasn't able to take much of it in. She told me she wished she could concentrate more on the talks, but I'm sure Heavenly Father will give her credit for trying! Hopefully tomorrow will be a better day. It doesn't look too positive for a field trip home tomorrow, but we'll just take it how it comes.

I still love you, Mom, even though I've already told you!

PEGS are NOT fun!

Mom had the PEG line inserted today. We were under the impression that it was a simple 15 minute procedure. Maybe it didn't take a long time, but it sure has been miserable. Her throat hurts from the tube/camera they put down into her stomach and her lips are swollen and sore, not to mention the wound in her stomach where the device was inserted. They have been giving her pain meds, but the thing that brought her the most relief was when Randy and RJ gave her a blessing tonight. After that she rested comfortably. Hopefully she will feel better rapidly. We were hoping to take her home to watch a session of conference, but she'll have to make a pretty big turn around for that to happen.

At least with the PEG line the pressure is off to get Mom to eat and drink enough. The staff has asked the family to be less involved at mealtimes and during Mom's therapy in order to allow her more control over her progress. We feel good about their request, as it will allow us to just focus on loving Mom and celebrating her progress instead of feeling pressure to have her perform.

Tonight Mom said that we don't always understand what we have to go through but that Heavenly Father knows the reasons why. What a woman of faith she is! Love ya, Mom!

Round and round and round she goes!

So Mom walked all the way around the floor one and a half times today! Way to go, Mom! The therapists have asked that we don't attend therapy with her anymore so she doesn't get distracted. I guess that means she's making progress, since they used to want us to come. Either that, or we're a bit over the top . . . (Hey, we're just trying to help!!!)

The PEG placement procedure is scheduled for tomorrow morning. While they're in there, the doctor will be checking to see what might be bothering Mom's stomach. If we can figure out what's hurting, maybe she will feel more like eating. Keep her in your prayers tomorrow!

Mom said the family prayer again tonight. It is always so wonderful to hear her talk to Heavenly Father! Jim Jr. is usually there to help feed Mom breakfast and he said she says the prayer on the food most every morning as well. That's our sweet Mom!

Tonight as I said goodbye to Mom I whispered to her that I pray for her all the time. She replied that she does the same for me! How sweet is that?!

Goodbye September!

Again today, Mom walked around the entire floor with someone on each side of her for support. It is so amazing that she can do this, and she seems on the upswing . . . that is, until mealtime arrives. For the past couple weeks Mom has complained that her stomach hurts and refuses to eat much at all. In fact, she becomes downright cantankerous when pushed. She doesn't quite get the fact that she is barely skin and bones, having lost 15 pounds since pre-surgery. She told me that she weighed 118 pounds when she got married, and she's just about there now. But there's really no use trying to reason with her about it, as she insists she DOES NOT want to eat. That's why the PEG line is looking more and more necessary.

Other than that, Mom continues to progress. Tonight she sat straight up in bed, scooted herself to the edge and tried to push herself up and off the bed. It's times like this that we can truly see her being at home in the near future. (Now if only she would EAT!!!)

On the compassionate side, tonight Ariane told us that Sharon (Scott's mom) has scheduled knee replacement surgery for her other knee. Mom became deeply concerned and said she was going to put Sharon's name in the temple tomorrow morning at 9 a.m. when the temple opens. When we had family prayer tonight, Mom prayed for Sharon as well. Later, she asked what day she needs to be back in Indiana to help out when the Kastelers go on their trip. She said she is planning on being there and asked how their dog, Maggie, is doing! That's Mom, always willing to help someone. (Now if we could just get her to help herself by EATING!)

With the weather turning cooler, all of Mom's cute capri outfits leave her a bit chilly. Tonight Ariane and I found a couple long-sleeved pajama outfits at Costco that seem just perfect. I think she will be much more comfortable and I'm excited to see her in them.

It's hard to believe that it's October. Mom has been in the hospital for the entire months of August and September. Here's hoping she goes home before Halloween. Although she's never been too fond of that holiday, it will probably be really exciting if she's in her own house! Now that's a happy thought!

If you don't like the weather, wait five minutes!

Mom's cough is better today. Whether it was the breathing treatment, the cough syrup, or simply getting better, we'll take it!

Mom had a great morning in physical therapy. We have found that if we keep her talking and engaged, she does quite well. Today she walked around the entire floor, with minimal assistance. Afterwards she was pretty sleepy and napped for a couple hours.

Food is still not too enticing to Mom, so it is a struggle to keep her caloric intake where it needs to be. Fluid intake is the same story. They are considering inserting a PEG line, which is basically a feeding tube that goes directly into her abdomen. She has had a PICC line since the day of the surgery, and they want to get it out because of the risk of infection, but we still need a backup plan if necessary for fluids, food and medications. The complication is that she is on blood thinners for her heart procedure, which makes the PEG procedure risky. Goodness gracious; I never realized how delicate of a balance life really is!

As you might have noticed, things change on a dime around here! It's like the old saying, "If you don't like the weather, wait five minutes and it will change." But we're definitely on an upward trend and we are thrilled!

Nine weeks today!

Mom started a cough on Saturday, which has become progressively worse. Although her lungs sound clear, tonight they did an x-ray to make sure she wasn't developing pneumonia. The x-ray did not show any fluid in her lungs, although it does show that the bottom portion of her lungs is not expanding fully. This situation is not uncommon in patients who spend a long time in the hospital since they spend a lot of time in bed and are not breathing as deeply as they would otherwise. Mom received some cough syrup, and the respiratory therapist gave her a breathing treatment, so hopefully she can get some sleep tonight.

Physical therapy went pretty well today, despite the cough. She walked quite far and pushed herself even when she got tired. Although she was not in as good of spirits as she was over the weekend, she seemed to maintain her physical progress. We'll take it.

When we think back to where we were nine weeks ago today, everything gets put into perspective. Hang it there, Mom. You're doing great!!!

Baby you can drive my car; yes you're gonna be a star!

OK, OK, Mom didn't actually DRIVE a car, but she did go for a drive IN a car, and for sure she was a star today! About 5:30 p.m., we loaded Mom in Randy's car, and went for a ride up Big Cottonwood canyon to see the beautiful Fall leaves. Mom seemed a bit tired, but was part of the conversation, recognized places as we drove along, and enjoyed the scenery. We were gone about 2 hours, and on the way back to the hospital even stopped at Jim Jr.'s house to say hello to Ruth. When we arrived back on the 12th floor, we thought Mom would collapse into bed, but instead she walked a bit to get her bearings, and then ate some dinner. Then she sat up and scooted to the edge of the bed. When we asked where she was going, she announced that she was going HOME! When we explained that she needed to be able to do several things independently before she could go home, she listened intently and then announced that she would have them all mastered in 4 days! Trust us, there's no stopping a Whitehead Woman when she makes up her mind, so this was a thrilling announcement!!!

For a couple weeks now, Jim Jr. has had a goal written prominently on the whiteboard in Mom's room. It says, "Pauline's goal is to walk out of the hospital and GO HOME!" Tonight Randy added a new list titled, "Pauline's own goals." He wrote down what she dictated, and then she jokingly added, "Walk on water!" We all got a good laugh out of that one.

After that, Mom asked who was keeping track of all the things she accomplished today. We told her that I am writing everything down on the blog, and asked her to list the things she wanted us to note. Here are some of her amazing accomplishments:

Fed herself some grapes and chips;

Walked from her bed to the restroom and out to the nurses' station;

Rearranged the covers on her bed;

Sat up and scooted herself to the edge of the bed;

Went from sitting on the edge of the bed to laying down on the bed;

Showed off her "Rockette" moves, lifting her legs straight off the bed;

Went for a ride in the car!

Not bad, dear Mother, not bad at all!!!

Before we left, Mom reminded us that we needed to have family prayer, and offered to say it herself. It has been an absolutely amazing day! Thank you, Heavenly Father!

The good times just keep on coming!

Today has been the best so far! Mom was able to help get herself out of bed and actually walk when she needed to get up (with someone on each side for support.) She was so cooperative and helpful, and extremely aware of what was going on. Mealtime was much easier and for the first time in quite awhile Mom drank enough fluids that she won't need the IV at night.

Physical therapy also went well, with Mom continuing to walk short distances at a time without the walker. We had a great conversation with her this evening where she told us her earliest memories and feelings about physical therapy. "You're sitting there and they're telling you what to do, and that this is for your best interest. I remember just screaming and screaming. It was atrocious!" She then expressed her approval about the latest plan where she can control how far she walks and when she needs to rest. She is so appreciative of her physical therapist's "desire to really make it work for me. He was able to put it in perspective and look at it from my viewpoint." Her insightful comments let us understand her feelings, and it was so wonderful to be able to communicate back and forth.

Mom and Cheryl and I were able to watch the Relief Society Broadcast tonight on my laptop, and enjoyed each other's company as we listened to the wonderful messages. Randy popped popcorn for us to munch on, and Mom was even able to feed herself a couple pieces of her favorite treat! Afterwards, Mom commented, "I was thinking of all the things Relief Society means in our lives - true love for Heavenly Father and all the joy He brings into our lives." Well said, Mother!

The day ended with me giving Mom a shower - our first try without a nurse. All I have to say is that it is much harder than it looks, and I ended up going home with very clean (but wet) shoes. Poor Mom was almost traumatized when the shower head didn't cooperate and sprayed out COLD water, but we smoothed things over afterwards with some warm blankets and a blow dryer for her wet hair.

We're looking forward to taking Mom home for a session or two of conference next week! The good times just keep on coming!

Who says miracles cease to exist?

What an unbelievably great day it has been. We hardly know where to begin with the wonderful news. First off, we learned this morning that Mom will be staying on the 12th floor for another two weeks! Who says miracles cease to exist?

And then, as if that wasn't enough, Mom walked again today, for the first time since last Saturday. But not only did she walk, she walked WITHOUT A WALKER!! Her physical therapist, Alex, got Mom on her feet by making a deal with her. He told her that if she walked all the way down the hall to her room, Dad would have to do the dishes for the next month. It was a lighthearted attempt to have her focus on something else during the exertion, and really helped. Mom made it about two thirds of the way down the hall but then needed to stop. As she rested, Alex decided on a whim to have Mom try the rest of the way without the walker - and IT WORKED! She was able to make it almost to her room with only the support of a therapist on either side. (Get the suds going, Dad!)

Then about an hour and a half later, Alex had a break in his schedule and came to get her early for the second session. We were worried that Mom was too tired to walk again so soon, but he came up with another plan which we feel was truly inspired. He decided to break up the walk into 30 foot increments and let her rest for a couple minutes between sections. It was a perfect plan for Mom because it allowed her to not only feel successful, but to also have some control over the process. She did a beautiful job and did not complain at all!

We are in awe of the Lord's hand in our lives, and hardly know how to express our gratitude for his tender mercies. Thanks for all your love and support. It has been a hard week, but the Lord did not let us down. He truly is in charge of our lives!

Mom and meds just don't agree

Mom's been off Ritalin since yesterday. Late this evening she rallied and we saw an improvement in stark contrast to the steady decline she has exhibited all week. We don't know if there's a correlation, but we'll take it. All we know is that it was heartening to see her eat some of the dinner she had previously refused, as well as quite a few Cheetos, one of her all time favorites! She even said the family prayer tonight as we were leaving. What dear, sacred words they were.

We'll keep you posted.

The darkest hour is just before dawn

IHC has declined to offer further assistance to keep Mom on the 12th floor. We are heartsick at this turn of events and can only trust that a loving Heavenly Father will buoy us up and strengthen us all through this difficult situation. We humbly ask for your prayers now more than ever.

Crossroads

Despite the challenges Mom's knee pain has presented in therapy these past few days, we are trying to build on other possibilities. Today Randy and Jim Jr. trained on how to transport Mom into a vehicle so we can take her on some short outings for a change of scenery. Randy wants to take Mom for a drive up the canyon tomorrow to look at the beautiful Fall leaves. I would love to be able to watch the Relief Society broadcast with her on Saturday, and I know she is looking forward to General Conference the week after that. Hopefully we will be able to expand her horizons a bit. It would do us all some good.

The insurance company informed us today that they will pay through Friday, which brings us to a most difficult crossroad. One of the painful truths we are facing is that there is no other facility besides where we are right now that can provide what Mom needs in order to achieve her full potential. This is not about dollars and cents; rather this is about a beautiful, extraordinary woman whose life was forever altered 57 days ago. While everyone involved wishes we could turn back the hands of time and change what happened, we are where we are, and can only choose to go forward from here with faith and determination. We have seen enough glimmers of her remarkable personality shine through that we are able to hold on through the hard times and keep forging ahead. While we have no illusions that this will be an easy process, we have been told by many experts that Mom has much progression still to come. Our job is to be her advocate and help open those doors which will provide the necessary rehabilitation she needs and deserves. We are praying for divine intervention to guide us as we strive to help Mom become Mom again. We invite you to continue praying mightily for this dear, sweet daughter of our Heavenly Father who has blessed the lives of so many throughout the years. Our humble prayer is that He will continue to be aware of her needs and pour out His choicest blessings of peace and healing upon her.

Trust His tender care!

Just for the record, brain injuries are no fun! Today was one of those days that left us scratching our heads and wondering, "Who are you, and what did you do with our Mother?" Mom did not want to do much of anything today, despite a great day yesterday and everyone's best efforts today. We did manage to get some therapy in today, despite the fact that Mom didn't want to walk too far with the walker. Jim Jr. and Randy helped her stand up and sit down on the side of the bed about 10 times. Then later on the therapists hooked Mom to the harness and she ended up walking a bit with the extra support it provided. But overall the day was mighty puzzling and downright frustrating. However, sometimes there's more than meets the eye . . .

Lately Mom has been complaining that the back of her right knee hurts and she doesn't want to straighten it out to walk. Unfortunately, it's next to impossible to walk with bent knees! Tonight, just when everyone was about at their wit's end with Mom's "lack of cooperation," Dr. Samuelson (the knee surgeon) arrived to see Mom. Lo and behold, after examining her, he expressed concern about the fact that . . . drum roll . . . the back of her right knee is forming scar tissue and is unable to straighten out all the way! (Seems as if Mom knew what she was talking about all along!) Anyhow, Dr. Samuelson ordered a splint for Mom to wear at night while sleeping which will keep her knee straight. The hope is that after a few nights the scar tissue will relax and she will be able to straighten the knee out all the way.

Today's situation couldn't have been more frustrating for the family and staff because it is evaluation time once again for the insurance company and we are in desperate need of a good report. What with scar tissue, an underactive thyroid and starting two new medications, the real situation is a tad bit hard to discern for those of us in the thick of things. That's why it was so refreshing to hear Dr. Samuelson's perspective about Mom's current condition as it has been a week and a half since he last saw her. His comment was that Mom is an entirely different person than he saw on the last visit because of all the improvement she's made! Now just how do we go about packaging that up for the insurance folks in Oregon?

We can only leave it in the hands of the One who can work mighty miracles. We will just lay this at His feet and trust His tender care.

Mom the Rockette!

(Although the blog entry says Monday, I haven't gone to bed yet, so this still qualifies as Sunday, September 20th!)

Today was a very exciting day for Mom. She was able attend the short Church services held downstairs. After partaking of the Sacrament, Mom was pretty tired so she fell asleep during the high councilor's talk but woke up in time to sing the closing song! All in all the meeting was a success!

Beginning with dinner last night, Mom has been able have an unrestricted diet again. Although she didn't particularly care for the menu items she received today, she was able to choose her selections for tomorrow, and is looking forward to having a caesar salad! Fresh fruits and vegetables are not part of the soft diet she has been on, so this will be new and exciting!

Later on this afternoon Mom was very alert and visited with lots of family and friends. She is gaining new skills each day that show just how far on the road to recovery she really has travelled. Today she wanted to sit up and try to get off her bed. She went from laying down to pulling herself upright, turning her body sideways, scooting towards the edge of the bed and dangling her feet over the side. She even stood up briefly, with help!

Another trick we particularly enjoyed was when Mom raised her legs 90 degrees off the bed so they were sticking straight up in the air. She even raised both legs up at the same time, which is no small feat for anyone! We teased Mom that she was going to join the Rockettes with her fancy moves!!!

Tom and Junko Shimizu came to visit and Mom discussed in detail many activities and people from the Brentwood Ward in Los Angeles where they all lived in the 1960's. Mom showed remarkable clarity in remembering events and carried on a great conversation!

So, we are delighted with these small milestones that Mom is achieving on a daily basis. Together they add up to huge progress, and we are thrilled to recognize more and more of Mom's sweet personality every day! Please continue to keep her in your prayers, especially tomorrow as she is evaluated for the insurance company. Although we are making wonderful progress, we still need more time here on the 12th floor!

Up and down

This morning Mom was awesome! First off, she walked all the way around the 12th floor using her walker. After she got back to her room, Ariane used the laptop to hook Mom up on video chat with the Kastelers in Indiana. Mom spent a wonderful 45 minutes talking back and forth with each one of them and could even read online messages they typed to her during the chat! It was so fun to watch her expressions and reactions, and she even crossed her legs as she talked! She was Grammie again, and it was phenomenal!

Unfortunately things took a downward turn from there. The chat took place during the scheduled time for speech therapy, but for some reason the therapist was delayed. We were anxious for the therapist to observe Mom talking and interacting so normally, and were disappointed that she didn't get to see any of it! It would have looked great on the reports!

In addition, the first walk left Mom pretty tired, so when the physical therapist came to help her walk again shortly thereafter, Mom could only make it half way around the floor, and she complained loudly all the way! The therapist was pretty hard on her and told Mom that if she would put the same amount of effort into walking that she did into resisting that she could be walking on her own. It was pretty frustrating to watch, because at that point Mom completely shut down. It was a lousy way to end an exciting morning.

It was the first time I had seen her walk in person, since I am always at school during Mom's therapy. I can see the therapist's frustrations, but on the other hand I could also understand Mom's exhaustion. She definitely does not have her old grit and determination back yet, but from what we understand about strokes, the exhaustion is very real. It is a fine line to know how much to push. She at least deserves some major credit for all she did before the second walk, but unfortunately, her efforts for the day will largely be labeled uncooperative.

This is very disappointing because our precious week actually started last Tuesday, so we are almost right back where we started with the insurance authorization a couple days ago. This continuous pressure to perform is becoming extremely tiresome, as it takes the focus off all the good that is happening. We need to remind ourselves that despite all the ups and downs, Mom's overall progress is really quite amazing. After all, it has only been ONE WEEK since she started walking!

As mentioned in yesterday's post, the doctor did start Mom on two medications. The first is synthroid which is prescribed for an underactive thyroid. Mom's TSH levels had skyrocketed to 31 and normal is somewhere between 4-6. This means that her pituitary gland is repeatedly sending messages to the thyroid to produce more thyroid hormone, but for some reason her thyroid is not functioning properly. An underactive thyroid can cause extreme fatigue, so this could potentially be good news as it is really quite an easy fix, but it will take a couple weeks to stabilize. The second medication they started is ritalin, which is prescribed to increase processing speeds in the brain. We are hopeful that these two medications will help Mom become more alert and cooperative.

On the brighter side, the speech therapist cleared Mom to have a regular diet. This is wonderful news because she was getting SICK AND TIRED of the same old foods every couple days. (She may never want to eat mac and cheese, green jello or lasagna again in her entire life!) To celebrate, we got a big order of french fries from downstairs and Mom ate every single one! Beginning Monday Mom will get to choose what she wants to eat from a menu, so hopefully mealtime will not be such a struggle.

Despite the frustrations of the day, we are choosing to focus on the wonderful things that happened and celebrate the excitement of Mom's progress. Hang in there, sweet Mom. Tomorrow's another day!

Fun pics

Here are some fun pics from last Saturday night. We had a great time hanging out in Mom's room as a family.

Mom's goal: To walk out of the hospital and GO HOME!

Mom continued to progress today. This morning as she walked with the therapists, Mom pretty much supported herself for the first 100 feet or so. The nursing staff is always so kind to cheer her on as she passes! Jim Jr. posted our goal on the whiteboard in Mom's room for all to see. It says, "Mom's goal: To walk out of the hospital and GO HOME!" Although we have a ways to go, we are keeping the goal in sight and working towards it every day!

Mom also got her hair cut today by one of the secretaries on the floor named Angie. What a kind and thoughtful thing for her to do! It has been two months since Mom's last haircut and her bangs were getting L-O-N-G!!! After the cut, Mom got a shower and shampoo, and I blow dried her hair. Mom looked so clean and pretty, cozily snuggled up under some warm blankets with a new hairdo!

Yesterday the doctor informed us that Mom's thyroid is not functioning properly. She has hypothyroidism, or low thyroid hormone levels, which may explain her extreme fatigue. Today they started her on medication to correct the situation. They also began giving her ritalin to help combat her sleepiness. We feel comfortable with these medications and are excited to see if they help her be more alert.

Another Miracle!

Tonight about 7:20 p.m. Jim Jr.'s phone rang as we sat in Mom's room. It was the insurance company calling (after hours, mind you!) to tell us that the appeals committee had reversed the denial and approved Mom's continued stay at IMC!!!!! The approval is only for 1 week, but it is standard procedure for the insurance company to approve things a week at a time. The way it was explained to us is that Medicare requires documentation a month at a time, whereas insurance companies require it weekly, and tend to micromanage all care received. So, we will take this gift, and express gratitude to a loving Heavenly Father who continues to guide Mom's recovery. We are thrilled with this news!

Jim Jr., Randy and Dad also deserve a medal for the many hours they spent gathering information and packaging it for submission to the appeals committee. The hospital was a tremendous help as well. Even the therapists banded together and wrote letters to facilitate the appeal. We are so very grateful for everyone's efforts!

Today has been a great day for Mom in many aspects. Lorraine came again this morning and watched Mom walk clear around the entire 12th floor in her walker. Mom told Lorraine that she knows what she has to do, but that it is just so incredibly hard to actually do it. Before she began walking, Mom and her physical therapist, Alex, were chatting and laughing together. Then Mom, in a joking, but slightly defiant manner piped up with a funny line, "Now, just who is the therapist here, you or me?" Everyone burst into laughter. In reality, it is an overwhelming task Mom faces on a daily basis to look this incredibly painful therapy in the face and literally keep putting one foot in front of the other. And, we all pretty much "require" her to do it, even when she doesn't much feel like participating. She is to be commended for her efforts. In fact, this afternoon Mom walked around the entire floor a second time. Way to go, Mom!!

Thank you everyone for being a part of this miraculous journey. We couldn't do it alone!

Calm in the eye of the storm

Well, to everyone's complete disbelief, the insurance company did not grant permission for Mom to remain on the 12th floor. Their reasoning is that she is on again/off again with her cooperation, despite the fact that she is walking each day and improving in so many ways. They recommend that she be moved to a skilled nursing facility (i.e. nursing home) instead of the intensive neuro rehab floor she is on. It's all a matter of dollars and cents (or is it sense?)

We have filed an appeal with the insurance company and spent the evening pow-wowing (is that even a word?) together as to the best course of action to take. Tomorrow we need to fax/email supporting documents and information to the insurance company to help our case. It has been amazing, no make that downright thrilling, to watch the course we should take unfold before us these past several hours. It all started when Dad, as only Dad can do, put his arm around one of the sweet nurses tonight and asked a question which ended up revealing some highly exciting news. Unbeknownst to us, on their latest goal sheet, the rehab staff estimated that if Mom continues her current progress that she could actually GO HOME in the next 2-3 weeks!!! Of course she would need some extensive help, but this piece of news was beyond our wildest expectations. (I seem to be using that phrase quite often these past few days!) As we looked over the goals each member of the therapy team set for Mom since she arrived, it became even more evident that she has progressed leaps and bounds. Then, as we sat talking at the end of the hall, one of our favorite CNAs joined the conversation. She explained that while the entire staff was skeptical about Mom's situation at first, they have all thrilled at her progress and are rooting wholeheartedly for her to stay. Bit by bit, as the night wore on we gained new pieces to the puzzle and were granted new insights about what we should do.

Despite this latest detour, we each feel peace and calm. It is our firm conviction and testimony that Heavenly Father is in charge and has guided our footsteps to this point. He will not let us down!!! Please join with us in faith and prayer for yet another miracle in Mom's behalf. Although we do not know how He will accomplish it, we know He will do just that! What a remarkable journey this has been to be a part of His great plan. Thank you for walking the path with us. Your faith and prayers sustain us!

Meanwhile, back at the ranch, our sweet Mother had a pretty remarkable evening chatting with us. She carried on a delightful extended conversation and enjoyed everyone's company. We showed her the blog and told her that people all around the world are following her progress! She was astounded to think that everyone would be interested! Then we showed Mom the video of her walking and her first comment was, "I look like a witch!" Not even a remote resemblance dear Mom!

Last night Ariane read the history of Lynn that Scott just finished writing for Mom's birthday. Today Mom talked extensively with the speech therapist about Lynn's story and wanted to hear it read out loud again tonight. Thanks, Scott, for all your tears and effort putting that together. It was amazingly effective long distance therapy (for all of us!)